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Rare Diseases NSW’s unique research-enabled model of care and translational impact are made possible by the world-class expertise and collaborative approach of our clinicians and researchers.
Rare Diseases NSW encompasses the wealth of rare disease expertise across the Randwick Health and Innovation Precinct (RHIP), which includes UNSW Sydney, Sydney Children’s Hospitals Network, and South Eastern Sydney Local Health District, together with 14 medical research institutes and centres.
Click below to see the list of clinicians and researchers involved with the Rare Diseases NSW Committee, which combines the RHIP Rare Disease Network and the Sydney Children’s Hospital Rare Disease Committee.
We look forward to building our team of support staff
The integrated care team will work across rare disease clinics to provide wholistic care to individuals and families with rare and undiagnosed diseases